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About the channel
The APF is dedicated to improving the health and well-being of individuals and families affected by Porphyria. The APF: Enhances public awareness; Develops educational programs and distributes educational materials; and Supports research to improve treatment and ultimately lead to a cure. The APF also serves as an advocate on your behalf to other public, private, and government agencies interested in funding research and educational programs. Our Scientific Advisory Board is made up of the world's foremost experts in porphyria management, diagnosis, and research. They have written or approved the medical information on the website.
Latest videos
Out of the Darkness, Into the Light: Part 1 of Documentary featuring Chris' Story Living with EPP
668 views · 04/18/2024
Think Porphyria Zoom - AHP, PCT & CEP- with Expert Dr. Roy Smith for Porphyria Awareness Week 2024
388 views · 04/17/2024
APF & CAP Present - EPP Patient Day 2024 Feat. Dr. Elizabeth Buzney Recorded March 24, 2024
257 views · 03/29/2024
Dr. John Manak AKA Dr. DNA Zoom Rare Disease Week 2024
470 views · 03/12/2024
Rare Disease Week 2024 - Icahn School of Medicine's Dr. Ibrahim Elsharkawi & Nicole Castellano
339 views · 03/11/2024
2023 EPP Patient Day - Porphyria Expert Dr. Karl Saardi with Q&A Session
1.22K views · 06/01/2023
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